"Don't give up yourself", the rare sick teenager of Shaoguan in the wheelchair is admitted to Guangzhou University!

Ye Linlin, who is just 18 years old this year, is sitting in a wheelchair

For a long time, he has been going to school and school

Almost pushed forward by grandma

When I arrive at the school, my father Ye Nanhua,

Teacher or classmate help to carry it on the stairs

This is the way to school

Ye Linlin goes to the "stage" of the college entrance examination and takes the university

Even the process of living in the trajectory step by step

It's all like this

This boy from Shaoguan, Guangdong

Du's muscle malnutrition disease

"DMD" for short

Due to illness, Ye Linlin's muscle atrophy

From the beginning to walking, the heel cannot be on the ground

Can't walk afterwards

20 medicines need to be taken every day to control the condition

But he has always kept his university dream

In the college entrance examination this year, he scored 579 points.

And successfully admitted by Guangzhou University

At the end of this year's college entrance examination, Ye Linlin took a group photo with his family.

01

Turning point of life

At the end of July, Ye Nanhua was in an interview

Talking about my son is about to study in college

His tone is firm:

"In any case, let Lin Lin finish his college!"

In the first grade of elementary school

Ye Linlin told his father when he was running

Always the last one of the class

Later, Ye Nanhua found that his son couldn't open the door lock at home

"I thought it was because the door lock at home was older

Lin Lin's strength is not enough, so it can't be opened. "

The family never imagined that Ye Linlin will suffer from DMD

Until some symptoms slowly begin to appear

When I was studying in the second grade of Ye Linlin

Ye Nanhua received a call from his ex -wife and Ye Linlin's mother

"I found that Linlin was put on the stairs

Walking like a duck "walks like a duck"

So Ye Linlin's mother took her son to the hospital for consultation

The doctor confirmed that Ye Linlin suffered from DMD

(Duchenne muscular dystrophy)

This is a hidden genetic disease that belongs to X chain

Known as "common disease in rare diseases"

Generally, symptoms such as muscle atrophy at 3 to 5 years old

If not intervened in time

Patients usually lose their walking ability before the age of 12

"My child and my mother have always been reluctant to believe, and I don't give up."

Ye Nanhua said

During the period when Ye Linlin was diagnosed

The family moves to multiple hospitals

But they all get the same results as when the diagnosis is confirmed at the beginning

Ye Nanhua is not good at expressing emotions to children

But his love for children will be active again and again:

Father and son together

Ascend Danxia Mountain, overlook the blue sea

Come to Tiananmen

Also look at the windy ups and downs of the Great Wall together

"We travel along the way, and many people care about and help

Thank you very much. "Ye Nanhua said

Ye Linlin once visited Beijing.

02

A ideal and firm heart

Ye Linlin can't walk now

Unless there are auxiliary brackets and shoes

Only a few steps can I barely take a few steps at home

However, physical pain has not eliminated his will

Instead

During high school, when you do rehabilitation exercises every night

One of them with a sandbag pressing the hips

Ye Linlin took the opportunity to memorize words

After the high three high school

He even reviewed every night until 12 o'clock in the evening

"In terms of learning, no matter what difficulties encountered

I have to work hard, "he said

To take care of Ye Linlin in time

The family rented a house near its high school

The grandma nearly 70 years old pushed Ye Linlin to school

Ye Nanhua also gradually discovered the growth of his son

"He learned optimism and calmness

Three years in high school, his attention is learning above ""

"Scientist Hawking's experience inspires me

I believe I can also realize my ideals "

This year's college entrance examination

Ye Linlin scored a good score of 579 points

According to scores and myself

After discussing with your family

He chose to fill in the computer major of Guangzhou University

For the upcoming college life

Ye Linlin has a lot of expectations:

"I want to experience more interesting university life

Can meet many friends "

"Continue, don't give up!"

At the end of July this year

When Ye Linlin knows his achievements

When being enrolled by Guangzhou University

He once again promised himself

Ye Linlin embraced a bouquet on the high school "adult ceremony".

03

The level in front of reality

Son is about to become a college student

Ye Nanhua is both happy and worried

"Is his physical condition convenient for accommodation?

I hope I can apply for a accompanying reading "

In this regard, Ye Nanhua also went to college

Explain the actual situation of the son's body

The school also said that he will do his best care

Help Ye Linlin successfully complete university studies

It is understood that the treatment of DMD

There is no healing method yet

Mainly adopted by clinical adoption

Drug therapy, physical therapy, gene therapy

And the method of stem cell therapy control the disease

The development of drugs in this field is relatively delayed

But in the past 5 years, he has also been approved several new drugs

Provide patients with more clinical drug options

"Lin Lin has not been reviewed for a while"

Because the medical resources of the family are limited

And the doctor who has been consulting his son is about to retire

The family is currently facing the problem of continuing to seek medical treatment

Data Display

The prevalence of rare diseases in the crowd is 3.5%-5.9%

The number of rare patients in China is about 20 million.

And like Ye Linlin's family

There are also tens of thousands of families waiting for the emergence of "medical miracles" in order to make DMD patients get better treatment as soon as possible

Although there is still a "level" in front of reality

But Ye Nanhua still hopes

Can give some comfort and encouragement for families with similar illnesses

These comforts originated from his sense of empathy

"From‘ difficult to accept ’to“ accepting '

It may be difficult

But we have to overcome it and face it bravely

Try to make your child walk more for a day "

Ye Linlin also has his own voice

He expects the same patient as himself

Can try to try the "threshold" in life

"Be optimistic and happy, don't give up yourself

Don't give up hope."He says

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Source | Southern+Client (Reporter Yang Qiong Intern Guo Kelan)

Picture | provided by the respondent

Edit | Zhuo Peiyi

School Division | Zeng Huiwen

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