The "Taishan Award" Medical Report Award: For small opinions, it reflects the various problems facing rare patients.

Author:Medical community Time:2022.08.12

On Saturday (August 13), the third "Taishan Award" awards event will be held in Shanghai. This article introduces the award -winning work of the annual medical reporting award: with delicate brush strokes and film -style lens language, telling the typical and uniqueness of the respondent Xu Wei and his family, and the earth reflects the rare patients who are facing rare patients. All kinds of problems.

(Detailed agenda attached to the 3rd "Taishan Award" at the end of the text)

Written article | Yan Xiaoliu

Source | "Medical Community" public account

The "Third Taishan Award" Medical Report Award awarded "Eight Points of Jianwen" deputy editor -in -chief of Chen Xin, "The choice of a father: a dangerous self -made medicine, or waiting for the child to die" (hereinafter referred to as "Selection").

Xu Wei in the text only has a high school degree. He is a son who has a rare disease, self -study gene editing, and self -built laboratory pharmaceuticals.

Because this special case involves multiple dimensions such as rare disease research, drug guarantee, family dilemma, life and death choices, and medical medicine under the epidemic, the article has universal characteristics and quickly become a topic of hot search on the entire network.

I have to say that from the father's experience, many problems in domestic medical systems can be exposed, including the introduction and research and development of new drugs, and the introduction of imported drugs.

As a scholar and practical worker who has long been working in the field of scientific communication, Jia Hepeng, an expert consultant of the "Taishan Award" selection committee and a professor of Suzhou University, said that the "Selection" combines medical content with the "victim's dilemma".

"After reading a text" I am not the medicine god "," Meng Xianli, an expert consultant of the "Taishan Award" selection committee and the editor -in -chief of the Health Times of the People's Daily, told the "medical community" that the selected articles were delicately strokes, movies The style of the lens language describes the typical and uniqueness of the respondent Xu Wei and his family, and reflects various problems facing children with rare patients.

Medical reports must shout on their arms,

Proper values ​​of propagation

Since the establishment of the three sessions, the selection criteria of the "Taishan Award" awards have been adjusted slightly. However, the purpose of the "Medical Report Award" is always the same: pay attention to the old, old, sick and dead from the level of micro and macro levels, so that every individual and needs are seen; the content opens scientific and civil wisdom, so that the people's attitude towards science tends The top -level design, promoting the reform of pharmaceutical and hygiene to continuously deepen from the perspective of people's health ...

"These are things that need to be concerned about medical reports, and it is a professional matter." "The Taishan Award" sponsor, the founder and chairman of the "Medical Community Network", said that in this era, professional reporters needed to be a specialized reporter, especially in the medical field.

First of all, medical care is related to everyone, but the public does not necessarily care about medical reports. A leading medical reform document, a subversive organ transplantation surgery, and a new drug compound that is placed in the laboratory -important events in these industries do not mean what the people want to know the most, may not be the most want to know, and may not be the most wanted to know. The people are placed in the category of "priority acquisition".

Secondly, because human basic cognition is to pay attention to negative information and avoid harm, the original intention of the public to see medical reports may be "seeing lively" or "map practical".

Mr. Chen Qirui pointed out that, based on the above psychology, no matter what the subject matter, excellent medical reports must have important communication significance. It attracts reading, dissemination, and even changing viewpoints and cognitions through contact with the audience and attracting the attention of the audience.

For example, "Selection". The author said: "I have seen a lot of rare disease stories, but almost all of them are fixed as a traditional narrative of 'patients miserable, no medicine, high medicine price, and medical insurance. Select topics, it is also difficult to change the patient's family. "

A few days after the release of "Selection", at 8 o'clock, Jianwen sent "Behind the Pharmaceutical Save the Children". From the article, "the value he (Xu Wei) believes in and is recorded and recorded" is realized one by one: the professor of the University of Chicago, a professor of genetic carrier technology, has contacted Xu Wei; Xu Wei has previously contacted The company completed preliminary research on homemade drugs and obtained positive results; more than one film and television company wanted to make this story into a movie ...

For a medical report, the eight o'clock Jianwen Editing team found, asked questions, and faced questions, and then studied, answered and tried to solve the problem -these are important signs to measure a report with depth and intensity.

"Each industry has its own responsibilities. What medical reports can do is to cheer up their arms. Through their own appeals, the correct values ​​are spread to the continuous improvement of the Chinese medical environment, and they can play their own strength," Mr. Chen Qirui It is pointed out that, including the "Medical Report Award", the establishment of the "Medical Community Network" and the "Taishan Award" are the experts, scholars, and organizations who have made outstanding contributions to the progress of Chinese medical care and make outstanding contributions to the progress of Chinese medical care. pay tribute.

"Today's Chinese medical care needs to adhere to the principle of 'justice', we need 'role models'."

August 13

The 3rd "Taishan Award" awards will be held in Shanghai

The detailed agenda is as follows

Source:

Responsible editor: Zheng Huaju

School pair: Zang Hengjia

More "Taishan Awards" article

*The medical community strives to make any promises and guarantees for the accuracy and reliability of the contents of the content when passing the review, but does not assume the timelyness and integrity of the quotable information (if.) Any responsibility caused by the outdated content and the may not be accurate or incomplete in the cited information. Relevant parties are requested to check or use this as a basis for decision -making.

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