Rules to death and decisive fresher

Decisive fresher to death- "China Charity Day" witnessed the feat of the frozen fighters

Cui Jiongxiang

"I announced that after my death, I donated my brain and spinal tissue to medical research for free!" On the afternoon of September 5th, on the occasion of the seventh "China Charity Day", Cai Lei faced many media facing many media. With the guests solemnly announced their own decisions, "Since the world has not been able to overcome fragrant symptoms, there is no special medicine, and the cause can not be found. I want to light my last bullet - Donate! "

This solemn announcement was at the speech at the "last bullet" media meeting of "the decisive battle of the decisive battle to the decisive battle of death". The event was co -organized by the Social and Public Welfare Magazine Society, the China Organ Transplant Development Foundation, the House of Gradually and Mutual Assistance, and the Chinese Brain Organization Library Cooperation Alliance. The event was held "offline+online".

In October 2019, after six diagnosis, Cai Lei, a promoter of Chinese electronic invoices and vice president of Jingdong Group, was diagnosed as gradual freezing. Gravity disease is a rare disease. It is listed as the first disease of the five major terminal disease by the World Health Organization. The scientific muscle atrophy of the sidewalk sclerosis (ALS) is one of the type of motor neurons. , Can't swallow or breathe until death, the average survival period is only 3-5 years. So far, the treatment of gradual frost is a world problem, the cause is unknown, and it cannot be cured.

In the face of terminal illness, Cai Lei did not retreat. He opened the "last entrepreneurial" in his life with the perseverance and courage that ordinary people could imagine. In recent years, Cai Lei has invested tens of millions of databases, supports patient groups, sets up scientific research teams, establishes laboratories, raises investment and public welfare funds, and promotes drug research and development ... However, he and the medical team have never found Effective ways. He is a flag -friendly figure of the felmeal group, and has gradually become the hope and spiritual pillar of the majority of patients with galaxy disease. In the past two years, his body has deteriorated, and he has lost his ability to take care of himself. He can no longer operate mobile phones and handle heavy work. Now every day is racing with life.

In order to overcome the frozen disease as soon as possible and leave the opportunity to give birth to others, Cai Lei decided to glow for his "last bullet" -oning behind him to donate his brain and spinal cord tissue to medical scientific research. Mr. Cai Lei found Chairman Zhao Hongtao of the China Organ Transplant Development Foundation, expressing his wish, hoping to bring some help to decrypting and decrypting in medical development through his last efforts, and he would call on more patients with frozen disease patients. We donated together. Cai Lei said that even if he fell down, he still hopes that everyone can continue the cause of resistance with gradient disease. Essence

To this end, the China Organ Transplant Development Foundation cooperates with the Chinese Human Brain Organization Library Cooperation Alliance and the House of Gradual Assistance to launch the "China Graduation Brain Organic Organization Library Plan" to help patients with frozen diseases complete the last desire to donate after their death, and and and of. It will build the first large sample pathological brain tissue database in the country, including the establishment of a Chinese frozen -free brain tissue donation volunteer registration library, the grades of the charitable fund, China's gradually frozen human brain research research project, etc., and promote the construction of the relevant brain tissue donation system , Scientific research sharing mechanism and charity assistance.

The experts at the meeting said that because the fragrant disease is a neurological disease, it is impossible to conduct research and discovery during the patient's life or live body. Patients with brain tissue and spinal tissue sample library, at the same time call for more medical experts and scientists to participate and set up cutting -edge efficient scientific research teams to find methods to solve the frozen disease.

Chairman Zhao Hongtao introduced to the participants and news media that the work of China's gradual frozen brain organization warehouse has also gradually begun, the donation channels and process mechanisms have been gradually established, and the standards of brain tissue sample collection and storage technology are gradually improved. As of now, more than a thousand patients and families of patients and patients have actively responded. The people's heroes, Zhang Dingyu, deputy director of the Hubei Health and Health Commission (patients with gradual frozen disease) are also one of them. It is a recent successful donation of patients with 2 gradients.

Gradually frozen fighters are in an irreversible countdown, but they are willing to dedicate their bodies to bring hope for their later patients. Gradually frozen fighters, and they went forward and successively. They used their lives to interpret the greatness and love of self -denial and death.

Director of Chinese human organ donation and transplantation committees, former deputy minister of the Ministry of Health, Huang Jiefu, academician of the Chinese Academy of Sciences, Director of the Academic Committee of the State Health and Diseases Brain Organization Resources Library, Duan Shumin, director of the Department of Medicine of Zhejiang University, Zhang Wenxiang, former Deputy Director of the Information Bureau of the Central Propaganda Department, Zhang Haixia, former Deputy Director of the Information Bureau of the General Office of the National Committee of the Chinese People's Political Consultative Conference, Cui Qiang, editor -in -chief of "Society and Public Welfare" magazine, Zhao Hongtao, chairman of the China Organ Transplant Development Foundation, Secretary -General Pu Miao, Jin Zhiguo, general manager of the House of Gradually, and Brainwood in various places About 50 representatives and mainstream media reporters participated in the event. Nearly 100,000 people on the Internet platform watched the live broadcast of the event online.

Mr. Cai Lei, Chairman Zhao Hongtao, and experts from brainwood answered questions from media reporters at the scene. After Mr. Cai Lei officially announced the donation willingness to donate after the death of more than a thousand gradual frozen diseases, all aspects of the participants, especially media reporters, expressed their respect to the frozen fighters, and said that they would call on the whole society to pay attention to gradually frozen frozen frozen frozen frozen frozen frozen frozen frozen frozen frozen froze. Rare diseases such as symptoms. Director Huang Jiefu pointed out that the human body's organization and organs can be donated, and the significance of the donation of tissue tissue is the same as that of organs. Mr. Cai Lei organized nearly a thousand galaxy patients to donate his own brain tissue to medical research after his death, which was of great significance. In recent years, under the concern of the Party Central Committee and the State Council, China's organ donation and organ transplantation have developed greatly. The new "human organ donation and transplant regulations" will soon be introduced, which will promote Chinese human organs and organization donations to be more. Last step.

Academician Duan Shumin said that he was very moved after he learned that there was a group of patients with spontaneous tissue tissue tissue tissue. The brain bank has been established for 10 years, and more than 300 specimens have been collected in the past 10 years, but there are no specimens of rare diseases. Therefore, this is an unprecedented feat, and it is unique in the world. It may rewrite the development history of Chinese brain banks.

Zhou Bing and Wang Qian, vice presidents of the China Social Work Federation, attended the event. Zhou Bing pointed out that the China Social Work Federation as the top -level, hub, and leading social organization of the Chinese Social Work Federation. It is a professional group that has received professional education, master professional theory, uses professional technology, and specializes in helping people. Through rooting in the community, they walked their households, went deep into the people, investigated research, linking resources, and adapt to time systems and policies for people. In the future, they will call on the majority of medical social workers and psychological social workers to pay more attention to gradual frosting groups and provide them with their ability to help.

Zhou Bing emphasized that the China Social Work Federation will actively assume industry mission and focus on the needs of the times. At present, the Federation is actively promoting the Chineseization of social workers, organizing social work, professionalization of social workers, standardized social workers' services, budgetization of social workers, and the development of social workers. The superiority of the socialist system has continuously enhanced the sense of gain, happiness, and security of the general public.

According to Cui Qiang, the editor -in -chief of the person in charge of the event "Social and Charity", Mr. Su Shizheng, deputy director of the CPPCC Painting and Calligraphers and Honorary Chairman of the Chinese Calligraphers Association, wrote the theme of the event, "Decisive Frozen", which aims to Through artistic works, pass on the concept of public welfare and love, promote the noble character of the traditional virtues, self -dedication, and self -dedication of the Chinese nation's watches and help, and to promote "everyone's good", "everyone's good", and plant the foundation of charity culture, so as to use Actual actions welcomed the 20th National Congress of the Communist Party of China.

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